“Not everyone gets to meet their superhero, but I gave birth to mine.” The Adventures of Theo

Theo is a happy 3-year-old with a life limiting condition, Ohtahara Syndrome – an uncommon type of epilepsy characterised by uncontrollable seizures and developmental delays. 

He has spent a lot of his life in and out of hospital but is slowly getting stronger and spending more time at home. He adores being around family and friends and joining in with activities, however Theo has brittle bones as part of his condition, so he has to do this safely. 

In his short life he has already had 9 fractures to his femur and tibia, so the safest way for Theo to be involved is in his specialised chairs. Unfortunately, the house as it stands isn’t big enough for these chairs to get through the front door, nor for the family to function with ease, which puts added pressure at a time where a space to spend time together is so important.

This resulted in his mum Kayleigh, along with encouragement and support from her best friend Michelle, creating a Facebook page to raise money to extend the front of the house and make access easier for Theo to enjoy a happy life, as well as raise awareness of Ohtahara Syndrome. The page was also created as a space to keep everyone up to date with Theo’s daily life, as well as somewhere for people to reach out to if they are going through a similar situation and need to talk.

A staggering £18,000 needs to be raised for essential work to the front of the house to enable Theo to be able to access his home. They have plans in place, now it is just a case of raising the money for this lifechanging work to finally begin. 

At the time of writing this article, they have currently raised nearly £2,000. The current supporters include Truey’s Snack Bar who have a donation box at her snack bar, Balloons by Naomi who has been raising money through her work, Royal Vulcans Cheer and Dance who have held events such as a PJ Party Weekend and Lailah, Darcie and Sola who are three kind young ladies who decided to sell sweeties to the people of their street to raise money. So many others have rallied together to help with this cause and every penny really does help. 

If you are unable to donate at this time, there are still plenty of ways you can help make a positive impact by inviting friends to like the Facebook page, asking friends or families who own a business if they would like to donate a prize or voucher, attend and support fundraisers as well as send across any fundraising ideas you may have.

If you would like to donate, please visit https://chuffed.org/project/lets-make-an-accessible-home-for-theo or you can search The Adventures of Theo on Facebook to find out more information and upcoming fundrasiers.